Posts Tagged ‘Rett Syndrome’

Karly’s Beau came in for a visit today and I was lucky enough to be there with my camera!  Aren’t those little shoes adorable?  To learn more about Karly and Beau check out her amazing blog –  www.spiritdances.wordpress.com



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Karly has BIG news to share – for more information check out her blog at


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In past posts you have met my friends Karly and Beau.  Karly is a young lady living with Rett Syndrome and Beau is her Compaion Horse.  Karly is very intelligent, and while she may not be able to speak like the rest of us, she does have much to say!  She is remarkable, she has learned toswope-wahlin-family-064-2.jpg communicate with her keyboard, she writes music and poetry and is very well spoken.  It is my privilige to introduce you to her new blog – titled – Inspired By Love.   Karly plans to let the world know what it is like to live with Rett Syndrome.      

 Check out “Inspired By Love” at www.spiritdances.wordpress.com

Karly has truly become a hero of mine!


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Over the past couple of years, I have been blessed to get to know and become friends with Karly and her family.  Karly has Retts Syndrome and Beau is her companion horse.  You can clearly see the special bond these two share.  They have shown me that you really don’t need words to communicate love and trust.  Karly has become a hero of mine, she knows what she wants and she works hard towards those goals! Karly communicates using her keyboard and wanted to share a little bit about herself in her own words:

I have Rett syndrome.  It has affected my ability to walk, kept me from speaking, affected my energy, made it challenging to breathe. In other words it has a huge effect on my days. I don’t want to have people to think of me only as having many challenges but as a young woman who has many gifts and interests.  I am able to compose music for piano and keyboards.  I share my music and stories in the hopes that I can inspire others to think of folks who live with a disability as having much to offer this world.  I love spending time with Beau. He brings so much joy to my life with his energy and his interest in people.  He is a very busy, nosy, little horse that makes me smile.  It is funny to see how much mischief he tries to get into. I love him!  It’s fun to see the looks on people’s faces when we are in town or on the trail.  I hope he’s able to go even more places this next summer.  It gives him and me something to look forward to.


check out their new blog at  www.spiritdances.wordpress.com

for anyone looking for more information on Rett Syndrome you will find info at


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Meet Beau.  Beau is a little  gentleman, who, I’m pretty sure doesn’t know he is a horse.  Beau is owned by a very special young lady named Karly.  Beau is her companion and an ambassador for people who have challenges in their lives.  Beau can go in the house, he rides in the van and has even been to school.  Check out their blog at www.spiritdances.wordpress.com



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